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Resources

Patient resources

Blood Cancer UK

A blood cancer charity offering information and support to people affected by blood cancer, including leukaemia, lymphoma, myeloma and other blood cancer types. Written with expert medical professionals and also people affected by blood cancer to make sure it's medically accurate, clear and trustworthy. 

Bowel Cancer UK

The UK’s leading bowel cancer charity. They are determined to save lives and improve the quality of life of everyone affected by bowel cancer. They support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care. 
 

Cancer Research Awareness Month

To highlight the clinical trials happening in Scotland the cancer research network will feature current trials happening during the different cancer awareness months that take place throughout the year

Cancer Research UK

Information on CRUK research programmes, clinical trials and fundraising work, as well as cancer information and statistics for patients, their families and friends. There is also a clinical trial search facility to find information on trials happening in the UK.

Macmillan Cancer Support

Macmillan Cancer Support improves the lives of people affected by cancer.  They provide practical, medical, emotional and financial support and campaign for better cancer care.  Visit the Macmillan Cancer Support website to access quality up to date information, which has been written by a specialist for patients, relatives and their carers.

Mesothelioma Center (Asbestos.com)

An advocacy group that works to spread awareness of asbestos-related diseases and help those currently suffering from them. Some of the things we offer are a monthly online support group where we discuss a variety of topics pertaining to cancer patients, an on-staff doctor and nurse available to answer any medical-related questions, 24-hour live chat support and patient Advocates that work 1-on-1 with individuals to help them find local doctors, treatment centers and support groups.

Mesothelioma Guide

Mesothelioma Guide is an advocacy organization dedicated to helping patients diagnosed with asbestos illnesses. Mesothelioma Guide raises awareness about mesothelioma as it rare.  They specialize in connecting patients with doctors and treatment options that are best suited for them. Their services and resources are 100% free to patients and family members.

Mesothelioma Hub

Mesothelioma Hub is your ultimate source for the latest information about mesothelioma and other asbestos-related illnesses. Our mission is simple: to connect mesothelioma patients and their families with the educational, medical, and legal resources they need. Since 2003, our leadership team has been building the best sites on the web to provide patients and their families with information and resources to deal with debilitating asbestos-related diseases.

Maggie's Centres

Maggie’s provides free practical, emotional and social support to people with cancer and their family and friends. The centres are built in the grounds of NHS cancer hospitals, Maggie’s Centres are places with professional staff on hand to offer the support people need.

NHS Choices (clinical trials)

NHS Choices provides comprehensive health information with thousands of articles, videos and tools, helping you make the best choices about your health and lifestyle. 

Sarcoma UK

Welcome to Sarcoma UK’s Clinical Trials Hub. You’ll find you all you need to know about sarcoma clinical trials in the UK, how you can get involved and if clinical trials are right for you.

UK Clinical Trials Gateway

The UKCTG provides information about participating in a clinical trial as well as a search facility to find relevant clinical trials.

Professional resources

Clinical Trials Toolkit On this site you will find practical help when trying to meet the requirements of the UK Medicines for Human Use (Clinical Trials) Regulations 2004. These regulations implement the EU Clinical Trials Directive in the UK.
Chief Scientist Office (CSO) CSO is part of the Scottish Government Health Directorates. They support and increase the level of high-quality health research conducted in Scotland.
EDGE EDGE is an innovative cloud-based research management system.
EORTC The European Organisation for Research and Treatment of Cancer (EORTC). Includes information on Trials (see the Protocols section).
Integrated Research Approval System (IRAS) Integrated research approval system for applying for permissions and approvals for health, social and community care research in the UK.
International Conference on Harmonisation (ICH) The International Conference on Harmonisation of Technical Requirements for Registration of Pharmaceuticals for Human Use (ICH) is a unique project that brings together the regulatory authorities of Europe, Japan and the United States and experts from the pharmaceutical industry in the three regions to discuss scientific and technical aspects of product registration.
Medicines and Healthcare products Regulatory Agency The executive agency of the Department of Health protecting and promoting public health and patient safety by ensuring that medicines, healthcare products and medical equipment meet appropriate standards of safety, quality, performance and effectiveness, and are used safely.
National Cancer Research Institute (NCRI) The National Cancer Research Institute (NCRI) is a UK-wide partnership between the government, charity and industry which promotes co-operation in cancer research among the 21 member organisations for the benefit of patients, the public and the scientific community.
NIHR Cancer Research Network Provides the NHS with an infrastructure to support high-quality cancer clinical research.
Quality Performance Indicators (QPIs) QPIs have been developed collaboratively with the three Regional Cancer Networks, Information Services Division (ISD), and Healthcare Improvement Scotland. QPIs will be kept under regular review and be responsive to changes in clinical practice and emerging evidence.
Research Ethics Service (RES) The UK Research Ethics Service was established to support clinical research and to facilitate the conduct of trials and other well-designed studies across the UK. As part of the UK Clinical Research Collaboration, it works towards the development of a world-class infrastructure to support the research in the UK.
Scottish Research Nurse and Coordinators Network (SRNCN)

The Scottish Research Nurse and Coordinator's Network has been established to provide a resource for research nurses, coordinators, data managers and others working in the field of clinical research. The aim of the network is to share information relating to how we all work including providing information on training and education, clinical trial regulations, support mechanisms and new job opportunities.

UK Clinical Research Network The UK Clinical Research Network was established to support clinical research and to facilitate the conduct of trials and other well-designed studies across the UK. As part of the UK Clinical Research Collaboration, it works towards the development of a world-class infrastructure to support the research in the UK.
Wellcome Trust Edinburgh Clinical Research Facility The RIE Clinical Research Facility and the Wellcome Trust Clinical Research Facility. These units together provide state-of-the-art facilities for investigators undertaking Clinical Research and include clinical, laboratory and specialised technical support.

Cancer Centres and Institutions

Beatson West of Scotland Cancer Cente The Beatson West of Scotland Cancer Centre provides all the radiotherapy, and much of the chemotherapy, for patients with cancer in Scotland’s west.
Beatson Institute One of Cancer Research UK’s core-funded institutes that carries out a programme of world-class science directed at understanding key aspects of cancer cell behaviour, and try to translate these discoveries into new therapies and diagnostic/prognostic tools to help cancer patients.
Edinburgh Cancer Research Centre Edinburgh Cancer Research Centre strives to carry out research of the highest quality into effective cancer prevention, diagnosis and treatment, as well as the symptoms associated with cancer. Edinburgh Cancer Research UK Centre provides a dynamic environment to inspire and train the next generation of cancer researchers.
Experimental Cancer Medicine Centres (ECMC) The ECMC Network aims to act as an efficient and effective network that will assist in the delivery of early phase cancer studies between research partners to enable faster and more personalised patient benefit.
Institute of Cancer Research The Institute of Cancer Research is one of the world's leading cancer research organisations and is internationally renowned for the quality of its science. The Institute is a college of the University of London and works in partnership with The Royal Marsden NHS Foundation Trust.